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Home > Social Care and Neurodisability > Volume 2 issue 1 > Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
Social Care and Neurodisability
ISSN: 2042-0919
Online from: 2010
Subject Area: Health and Social Care
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Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
| Title: | Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis |
|---|---|
| Author(s): | Kate Heward, (Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield, UK), Brendan Gough, (School of Social Sciences, Nottingham Trent University, Nottingham, UK), Matthew Molineux, (School of Occupational Therapy and Social Work, and Centre for Research into Disability and Society within Curtin Health Innovation Research Institute, Curtin University of Technology, Perth, Australia) |
| Citation: | Kate Heward, Brendan Gough, Matthew Molineux, (2011) "Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis", Social Care and Neurodisability, Vol. 2 Iss: 1, pp.21 - 32 |
| Keywords: | Carers, Grounded theory, Identity, Multiple sclerosis, Partners |
| Article type: | General review |
| DOI: | 10.5042/scn.2011.0081 (Permanent URL) |
| Publisher: | Emerald Group Publishing Limited |
| Abstract: | The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired. |
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