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Social Care and Neurodisability
ISSN: 2042-0919
Online from: 2010
Subject Area: Health and Social Care
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Mary's story
| Title: | Mary's story |
|---|---|
| Author(s): | Terry Scragg, (University of Chichester, UK) |
| Citation: | Terry Scragg, (2011) "Mary's story", Social Care and Neurodisability, Vol. 2 Iss: 1, pp.15 - 20 |
| Keywords: | Increasing disability, Lack of diagnosis, Pressure on family, Prion condition, Prion diseases, Service responses, Terminal care |
| Article type: | General review |
| DOI: | 10.5042/scn.2011.0080 (Permanent URL) |
| Publisher: | Emerald Group Publishing Limited |
| Abstract: | This article describes the impact of a rare hereditary condition on an individual and their family, the difficulties of achieving a diagnosis, the support arrangements provided by social care services and help provided by the Prion Clinic in the latter stages of the condition, and terminal care at home. |
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